Hi.

I’m sorry this post is so long, but it’s a topic I am very passionate about! I’m going to sort this blog post into sections, so it’s a bit easier to understand.

What is Autism Speaks?

Autism Speaks is an American charity, which helps families who have a family member with autism.

I’ve taken this from the Autism Speaks website

“Autism Speaks was founded in February 2005 by Bob and Suzanne Wright, grandparents of a child with autism. Their longtime friend Bernie Marcus donated $25 million to help financially launch the organization. Since then, Autism Speaks has grown into the world’s leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.”

At Autism Speaks, our goal is to change the future for all who struggle with an autism spectrum disorder. We are dedicated to funding global biomedical research into the causes, prevention , treatments and a possible cure for autism. We strive to raise public awareness about autism and its effects on individuals, families, and society: and we work to bring hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals. Autism Speaks aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis. It is our firm belief that, working together, we will find the missing pieces of the puzzle.”

So what good things has Autism Speaks accomplished?

They have raised awareness of autism, leading to more diagnosis’ in America, with prevalence 10 years ago being 1/166, but now being 1/68. They have also funded research on the causes of autism, and therapy for people with autism.

So why don’t you support Autism Speaks?

  1. Because they view autism as a disease. Simple. We are people, not pieces in a puzzle.
  2. There’s not one person with autism on their board, (John Elder Robison, a man with aspergers was on the science board, but he resigned in 2013, his statement is herewhich I would recommend reading). Remember how everyone reacted when Rachel Dolezal (Former president of the NAACP) turned out to be white, Autism speaks should be run by someone with autism, or at least have people with autism on their board.
  3. Here’s an image which explains their budget
  4. At Autism Speaks, our goal is to change the future for all who struggle with an autism spectrum disorder.

We are dedicated to funding global biomedical research into the causes, prevention, treatments and a possible cure for autism. We strive to raise public awareness about autism and its effects on individuals, families, and society: and we work to bring hope to all who deal with the hardships of this disorder. We are committed to raising the funds necessary to support these goals.

Autism Speaks aims to bring the autism community together as one strong voice to urge the government and private sector to listen to our concerns and take action to address this urgent global health crisis. It is our firm belief that, working together, we will find the missing pieces of the puzzle.

This is their mission statement. I’ve underlined the problematic areas. DO NOT TREAT AUTISM AS A DISEASE! IT IS NOT A DISEASE. IF AUTISM CARRIES ON GETTING TALKED ABOUT LIKE A DISEASE, THIS WILL STIGMATISE US FURTHER!

  1. I am autism is a short film where autism is personified as a monster-like voice,

“I work faster than paediatric aids, cancer, and diabetes combined
And if you’re happily married, I will make sure that your marriage fails.
Your money will fall into my hands, and I will bankrupt you for my own self-gain.
I don’t sleep, so I make sure you don’t either.
I will make it virtually impossible for your family to easily attend a temple, birthday party, or public park without a struggle, without embarrassment, without pain.”

This video was removed from youtube but Autism Speaks has yet to provide an apology.

  1. They have also made Autism every day. There are several horrible things about this film, but by far the worst is a mother of a girl with autism saying that she wanted to drive herself and her daughter of George Washington Bridge, and only stopped because of she had a non-autistic daughter, and the mother says this in front of her daughter with autism, not knowing whether her daughter understood or not.
  2. Only in February 2015 did they change their view on the vaccine/autism link. Before this change, they believed that vaccines could cause autism, and spent way too much money on researching this.

    I’m only going to cover a few of the main points as I don’t feel that I am the right person, as a British teenager who has only just started learning about the autistic community in the past year, to explain all of the complex reasons why the majority of people with autism do not support Autism speaks, so if you want to read more about this issue, here are a few links.

    http://adiaryofamom.com/2013/11/12/no-more-a-letter-to-suzanne-wright/

    http://rachelkeslensky.hubpages.com/hub/autistics-speak-for-themselves

    https://thecaffeinatedautistic.wordpress.com/new-autism-speaks-masterpost-updated-62014/

    http://autisticadvocacy.tumblr.com/post/102634036950/so-why-is-autism-speaks-bad-im-confused

    http://www.dailykos.com/story/2007/05/20/336513/-An-Autistic-Speaks-About-Autism-Speaks

    As I said before, I’m not the best source, and I may have got some things wrong, so if I did make some mistakes, or there are some things you disagree with, please comment or message me and I’ll change it because I know this is an important topic for so many people.

    See you soon,

    Beth xxx

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